CANCER EXPERIENCES RESEARCH

The Cancer Experiences Research group at the Peter Mac is committed to improving care and treatment experiences, and health and wellbeing outcomes, for all people affected by cancer. Our multi-disciplinary research is focused on generating new and implementing existing knowledge, to the benefit of patients, their support networks and healthcare providers. Our research spans the cancer continuum from diagnosis through into survivorship, the management of advanced disease and end of life care.

To deliver against our vision for improved cancer experience and outcomes, our research studies target communication skills, health literacy, emotional and physical functioning, care coordination and equitable access to appropriate care, patients, carer and professional education, information about self management and wellbeing during treatment and into survivorship, and living well at the end of life.

• Cancer Nursing Research
• Survivorship and Living Well after Cancer Research

Active

• ATTUNE: Feasibility of Patient-Reported Outcomes (PROs) for lung cancer
• Consumer-lead development of video resources for patients and caregivers of patients receiving immunotherapy
• Defining NETs: Defining supportive care needs and psychological morbidity of patients with functioning versus non-functioning neuro-endocrine tumours (NETS)
• Mapping patterns of care for patients with pancreatic cancer: how close are we to the Optimal Care Pathways?
• Navigate: An online treatment decision aid for men diagnosed with prostate cancer and their partners
• SCORE: Shared care of Colorectal cancer survivors – A randomised controlled trial of hospital-based follow up versus shared hospital / community follow up for survivors of colorectal cancer.
• SECOND ears: Development of an audio-recording app for patient consultations
• SUPER: Solving Cancer of Unknown Primary
• Signpost study: Development of a tailored supportive care resource for women with metastatic breast cancer

Recruiting

• Defining NETs: Defining supportive care needs and psychological morbidity of patients with functioning versus non-functioning neuro-endocrine tumours (NETS)
• Perspective: Patterns and profile of patient experiences with pembrolizumab over time
• SCORE: Shared care of Colorectal cancer survivors – A randomised controlled trial of hospital-based follow up versus shared hospital / community follow up for survivors of colorectal cancer.
• SUPER: Solving Cancer of Unknown Primary

Ongoing

• Complex wounds in community cancer care: Exploring nurses’ clinical practice and experiences.

Completed

• ACCRUE: Advancing consultation recall and understanding
• AMSR: Advanced melanoma support resources
• COACH: Consumer-led communication skills modules for cancer healthcare workers
• GO! Development of an online education resource to improve nursing care of older people with cancer
• INFORM: Improving information and communication for migrants with cancer (Phase II RCT)
• Multidisciplinary care for women with Metastatic Breast Cancer
• PRISMS: The patient remote intervention and symptom management system (Phase III RCT)
• Pain screening: Promoting standardised cancer pain screening at Peter Mac
• PeNTAGOn: Peer and nurse support trial to assist women in gynaecological oncology
• SurvivorCare: A randomised controlled trial evaluating a nurse-led survivorship care package for bowel cancer survivors.

Other

• • Further information

Jo Phipps-Nelson PhD, Manager

Phone: (03) 8559 5905

Email: jo.phipps-nelson@petermac.org

We have delivered a range of presentations and published many journal articles about the outcomes of our Cancer Experiences Research.